Click here from any page to return to the Home Page
About Us
Click here for more info
Click here for stories and upcoming events
Click here to view our Online Forum
Direct contacts with our support staff
Our Guestbook
Links to other GBS related sites
Find out more about where we live

You are visitor
number
People visited today
visitors
currently online
Site last updated on
05/01/2004

 

 

Name: Sheena Marie Rangel
Origin: San Diego

 

Hi my name is Sheena and I had Guillain Barre Syndrome on April of 2001 and I'm only 17 years old I got it when I was 16. But I got it twice the first time I got it worse the second time it was not that bad.

I went to the doctor three times and they were telling me it was stress because I was having headaches and I lost my balance I had to walk all over my house holding on to the walls. finally I was having seizures on my couch and I went to the hospital and they found out I had Spinal Meningitis but they still did not know what was wrong with me so they took me to a different hospital the next day. A neurologist and my doctor found out what I had.they told my parents and I was so drugged up that I don't even remember what things happened around me. There is no cure for (GBS) they can only control it by plasma.

I came to the point that I could not walk or turn myself on the bed I was in ICU for 2 weeks I could not see my son for those 2 weeks. I really thought I was going to die but they told me that they were going to take good care of me.

After the plasma I went in to rehab a for a month. I got to go home and but I went home with a cane. Then two weeks later I had no sensation in my feet. One time I was reaching for my cane by my sons crib and i feel to the floor and hit my head on the crib. Then one day when I went to speech therapy my jaw went cricket and they sent me home and I stopped at my neurologists office and he did tests for three hours. He told me I got the (GBS) back and that I had to go back to the hospital so I went and they did a spinal tap on me and put a catheter in my neck. Sorry if I don't spell right. And now I'm fine but i can't get sick for a year or I can get it again. That was the scariest thing that has happened to me.

 
SITEMAP
© Copyright 2002 GBSTasmania. Website designed by