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Site last updated on
05/01/2004

National Groups Presidents 2003 annual report

National Groups Presidents 2003 annual report Thank you to CSL for keeping us afloat with $1,000 which covers Conferlink and Postage. Also thank you to Snap Printing, St. Kilda, for sponsorship of the "INVoice" and our new Council Letterhead.

Internationally

On our behalf I am in touch with Canada, U.K., Canada, Ireland, New Zealand and Denmark. Through this Sharon Marcussen President of the newly constituted GBS Assoc. of Denmark came to stay with her husband for a few days.
We are presently working on getting an Australian Reconstructive Surgeon (to whom I am a part-time Secretary) who specialises in working world-wide with neuropathies to Denmark to help Danish CIDPERS, GBS, and Doctors. This is very political and may take another 12 months. I missed out on Conference in New Zealand due to Visa problems but met up with patients in Christchurch and over the phone whilst there. 150 attended - I will go in 2005.
I have received some letters from Poland, Greece, and Fiji and was able to help them.

Around Australia

Canberra has started with Gayle Harding. Adelaide - a Wendy Husker nurse at the Hampstead Rehab. Hospital interested in setting up already has a nucleus of patients. Thank you to those who sent reports to her for me.

CSL asked me to attend a meeting with them next month to discuss a questionnaire to find out shortages around Australia for our members. Also to discuss putting a proposal to them for more funding to enable the Council to grow.

All States doing well with support to their patients, and members. Those with Websites getting many visits to them.

Thank you everyone for being there for me and especially to Secretary/Treasurer Melva

Vilma Clarke
President - National Council

 
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