1st June is National Awareness Day for GBS &
CIDP.
These initials stand for words that aren't easy to remember!
Guillain-Barré Syndrome
And
Chronic Inflammatory Demyelinating Polyneuropathy
GBS & CIDP are illnesses of the body's Nervous System and
although rare can affect anyone, regardless of age or, gender. They
seem to be related to an autoimmune response following an infection.
Messages pass along nerve pathways and this system can be likened
to an electrical circuit. When wires are stripped of their coloured
plastic cover, they loose their insulation. The connections are
then interrupted, sparks fly and the result is poor or zero power!
The sheath encasing the peripheral nerves acts like the plastic
coat on a wire and allows impulse transmission. In GBS & CIDP
specialized cells in that sheath become damaged and cause impaired
nerve conduction leading to the symptoms of these two illnesses.
GBS starts very suddenly with muscle weakness and abnormal sensations.
Paralysis follows - predominantly of the arms, legs and face. Respiratory
complications are common, as the muscles cannot respond without
nervous system messages. In the acute phase untreated, the illness
can be fatal. Many patients require intensive care during the early
stages. Although most people recover it can take months, and some
may have long-term disabilities of varying degrees.
CIDP is on going and increasingly painful and debilitating. The
first symptoms may be vague and confusing and in the early stages
it may be difficult for the patient to persuade people that there
is anything physically wrong. Tingling (pins and needles) or loss
of feeling (numbness) can start in the toes and fingers or weakness
may make the legs feel heavy and wooden. Arms may feel limp and
hands cannot grip or turn things properly. These symptoms may remain
mild and result in only minor disruption of normal life. Alternatively
they can worsen over a period of several weeks, months or sometimes
even years.
Support Groups for these conditions exist in each State of Australia
as well as in UK, USA & NZ. One of the main purposes of each
group is the support of sufferers and their families. If you want
to know more you can contact your local Support Group through the
following Web Sites.
http://home.vicnet.net.au/~ingroup/news22.htm
http://members.ozemail.com.au/~guillain/index.htm
http://www.gbstasmania.asn.au
Or write to Ro Harré at PO BOX 321, Malanda, QLD 4885, phone
074095 1311
E-mail Address - rohar@austarnet.com.au
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